ICHTHYOSIS

FIRST: Foundation for Ichthyosis and Related Skin Types

http://www.scalyskin.org

 

 

ILEOSTOMY

See:  Ostomy

 

 

ILLNESS, TERMINAL

Childrens Hospice International

http://www.chionline.org

 

 

IMMUNE DEFICIENCY  

See also:  Autoimmune Disorders

 

Immune Deficiency Foundation

http://www.primaryimmune.org

 

 

INCONTINENCE

National Assoc. for Continence

http://www.nafc.org

 

Simon Foundation for Continence

http://www.simonfoundation.org

 

 

INCONTINENTIA PIGMENTI     

See also:  Ectodermal Dysplasias

 

National Incontinentia Pigmenti Foundation

http://imgen.bcm.tmc.edu/nipf

 

 

INTESTINAL PSEUDO-OBSTRUCTION SYNDROME

International Foundation for Functional Gastrointestinal Disorders (IFFGD)

http://www.iffgd.og

 

 

JANSKY-BIEL SCHOWSKY DISEASE

See:  Batten Disease; Tay-Sachs Disease

 

 

JOUBERT SYNDROME

See also:  Apnea, Sleep

 

Joubert Syndrome Foundation

http://www.joubertfoundation.com

 

 

KERNICTERUS

See also:  Cerebral Palsy

 

Parents of Infants and Children with Kernicterus (PICK)

http://www.bilirubin.net

 

 

KIDNEY DISEASES, HEREDITARY

See also:  Cystinosis; Kidney Disorders, Hereditary; Oxalosis & Hyperoxaluria

 

Hereditary Nephritis Foundation

http://www.cc.utah.edu/~cla6202/HNF.htm

 

 

KIDNEY DISORDERS   

See also:  Cystinosis; Kidney Diseases, Hereditary; Oxalosis & Hyperoxaluria

 

American Association of Kidney Patients

http://www.aakp.org

 

American Kidney Foundation

http://www.arbon.com/kidney

 

National Kidney Foundation

http://www.kidney.org

 

The PKD Foundation (Formerly Polycystic Kidney Research Foundation)

http://www.pkdcure.org

 

 

KLINEFELTER SYNDROME      

49XXXXY Syndrome Association

*  kimbj@juno.com

 

Klinefelters Syndrome Assoc., Inc

47, XXX and 47, XYY

http://www.genetic.org

 

 

KRABBE DISEASE

See: Leukodystrophy; Tay-Sachs Disease

 

 

KUFS DISEASE

See:  Batten Disease; Tay-Sachs Disease

 

 

KUGELBERG-WELANDER DISEASE

See:  Spinal Muscular Atrophy

 

 

KYPHOSIS

See:  Scholiosis