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CANCER

CANCER

See also:  Bone Marrow Transplant; Brain Tumors; Colon Cancer, Hereditary; Leukemia; Polyposis

 

American Cancer Society

http://www.cancer.org

 

Candlelighters Childhood Cancer Foundation

http://www.candlelighters.org

 

 

CATS CRY SYNDROME

See also: Cri Du Chat Syndrome

 

 

CELIAC DISEASE

Celiac Disease Foundation

http://www.celiac.org

 

American Celiac Society

* amerceliacsoc@netscape.net

 

American Celiac Society Dietary Support Coalition

*  bentleac@umdnj.edu

 

 

CEREBRAL PALSY

United Cerebral Palsy Associations

http://www.ucp.org

 

United Cerebral Palsy of NYC

http://www.ucpnyc.org

 

 

CHARCOT-MARIE-TOOTH DISEASE

See also: Ataxia; Muscular Dystrophy; Myelin Disorders

 

Charcot-Marie-Tooth Association

http://www.charcot-marie-tooth.org

 

Charcot-Marie-Tooth International

http://www.cmtint.org

 

 

CHARGE ASSOCIATION

See also:  Heart Disorders; Hearing Impairments; Velo-Cardio-Facial Syndrome; Visual Impairments

 

CHARGE Syndrome Foundation

http://www.chargesyndrome.org

 

CHRIST-SIEMENS-TOURAINE SYNDROME

See: Craniofacial Disorders; Ectodermal Dysplasias

 

 

CHROMOSOME 13 & 18 DISORDERS

See:  Chromosome 18 Disorders

 

 

CHROMOSOME 4P-

See also:  Wolf-Hirschorn Syndrome

 

Chromosome 4P- Support Group

*  syork@scattercreek.com

 

Priority 4 Families Support Group (WHS & 4p-)

http://priority4families.tripod.com

 

 

CHROMOSOME 5P-

See:  Cri Du Chat Syndrome

 

 

CHROMOSOME 8P DISORDERS

8p Duplication Support Group

*  genemail@aol.com

 

 

CHROMOSOME 9 DISORDERS

Chromosome 9p-Network

http://www.9pminus.org

 

 

CHROMOSOME 17P-

See:  Smith-Magenis Syndrome

 

 

CHROMOSOME 11Q-

Chromosome 11Q- Research and Resource Group

http://ucsu.colorado.edu/~bia

 

 

CHROMOSOME 18 DISORDERS

Chromosome 18 Registry & Research Society

http://chromosome18.org

 

 

CHROMOSOME 21 RING

See:  Chromosome Deletions

 

 

CHROMOSOME 22 RING

See also:  Chromosome Deletions

 

Chromosome 22 Central

http://www.c22c.org

 

 

CHROMOSOME 3, MONOSOMY 3P2

See:  Chromosome Deletions

 

 

CHROMOSOME 4 RING

See:  Chromosome Deletions; Wolf-Hirschhorn Syndrome

 

 

CHROMOSOME 45,X

CHROMOSOME 45,X / 46,XX

See:  Turner Syndrome

 

 

CHROMOSOME 46XY / 47,XXY

CHROMOSOME 47,XYY

CHROMOSOME 48,XXXY

CHROMOSOME 48,XXYY

CHROMOSOME 49,XXXXY

See: Klinefelter Syndrome

 

 

CHROMOSOME 9 RING

See:  Chromosome Deletions; Craniofacial Disorders

 

 

CHROMOSOME DELETIONS

Chromosome Deletion Outreach, Inc.

http://www.chromodisorder.org

 

 

CHROMOSOME DISORDERS

See also:  Chromosome 13& 18 Disorders

Chromosome 22 Central

http://www.c22c.org

 

 

CHROMOSOME INVERSIONS

National Center on Chromosome Inversions

http://www.Barkersnet.com/NCFCI

 

 

CHRONIC FATIGUE SYNDROME

CFIDS Association of America Youth Alliance

http://www.cfids.org

 

 

CLEFT PALATE

See also:  Craniofacial Disorders

 

Cleft Palate Foundation

http://www.cleftline.org

 

 

COFFIN-LOWRY SYNDROME

Coffin-Lowry Syndrome Foundation

http://clsfoundation.tripod.com

 

 

COLITIS

See:  Crohn Disease & Colitis

 

 

COLON CANCER, HEREDITARY

Hereditary Colon Cancer Registry

http://www.hopkins-coloncancer.org

 

Hereditary Colon Cancer Association

http://www.hereditarycc.org

 

 

CONNECTIVE TISSUE DISORDERS

Coalition for Heritable Disorders of Connective Tissue

http://www.marfan.org

 

 

COOLEY ANEMIA / THALASSEMIA MAJOR

See also: Autoimmune Disorders

 

Cooleys Anemia Foundation

http://www.cooleysanemia.org

 

Thalassemia Action Group

* ncaf@aol.com

 

 

CORNELIA DE LANGE SYNDROME

Cornelia de Lange Syndrome Foundation

http://cdlsoutreach.org

 

 


CRANIOFACIAL DISORDERS

AboutFace International

http://www.interlog.com/abtface

 

AboutFace USA

http://www.aboutface2000.org

 

Tennessee Craniofacial Center

http://www.erlanger.org/cranio

 

FACESThe National Craniofacial Association

http://www.faces-cranio.org

 

Lets Face It

http://www.faceit.org

 

National Foundation for Facial Reconstruction

http://www.nffr.org

 

Childrens Craniofacial Association

http://www.ccakids.com

 

 

CRI DU CHAT SYNDROME

5p- Society

http://www.fivepminus.org

 

 

CROHN DISEASE & COLITIS

CCFA: Crohns & Colitis Foundation of America

http://www.ccfa.org

 

 

CROUZON DISEASE

See:  Craniofacial Disorders

 

 

CUSHING SYNDROME

See:  Adrenal Disorders

 

 

 

CYCLIC VOMITING SYNDROME

Cyclic Vomiting Syndrome Association

http://www.cvsaonline.org

 

 

CYSTIC FIBROSIS

Cystic Fibrosis Foundation

http://www.ccf.org

 

 

CYSTINOSIS

See also:  Kidney Disorders

 

Cystinosis Foundation

http://www.cystinosis.com

 

 

CYSTINURIA

See also:  Kidney Disorders

 

Cystinuria Support Network

http://www.cystinuria.com

 

 

CYTOMEGALOVIRUS (CMV), CONGENITAL

Clinical Care Center

http://www.bcm.tmc.edu/pedi/infact/cmv

 

 

 

 

 

 

 

 

 

 

 

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