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HALLERMAN-STREIFF SYNDROME

HALLERMAN-STREIFF SYNDROME

See:  Craniofacial Disorders; Ectodermal Dysplasias; Short Stature

 

 

HALLERVORDEN-SPATZ SYNDROME

Halervorden-Spatz Syndrome Association

http://www.hssa.org

 

 

HEAD INJURY

See Brain Injury

 

 

HEARING IMPAIRMENTS

Alexander Graham Bell Association for the Deaf and Hard of Hearing

http://www.agbell.org

 

American Society for Deaf Children

http://www.deafchildren.org

 

American Speech, Language, Hearing Association

http://www.asha.org

 

Auditory-Verbal International

http://www.auditory-verbal.org

 

Deafnes Research Foundation

http://www.hearinghealth.org

 

Gallaudet University

http://www.gallaudet.edu

 

John Tracy Clinic for Preschool Deaf Children

http://www.johntracyclinic.org

 

Lead Line

http://www.hei.org

 

National Association for the Deaf

http://nad.com

 

National Deaf Education Network and Clearinghouse

http://clerccenter.gallaudet.edu

 

SEE Center for the Advancement of Deaf Children

http://www.seecenter.org

 

SHHH: Self Help for Hard of Hearing People

http://www.shhh.org

 

Telecommunications for the Deaf, Inc.

http://www.tdi-online.org

 

The Learning to Listen Foundation

http://www.learningtolisten.org

 

National Cued Speech Association (NCSA)

http://www.cuedspeech.org

 

 

HEART DISORDERS

American Heart Association

http://www.americanheart.org

 

CHASER:  Congenital Heart AnomaliesSupport, Education, & Resources, Inc

http://www.csun.edu/~hfmth006/chaser

 

 

HEMIHYPERTROPHY

See:  Beckwith-Wiedeman Syndrome

 

 

HEMIPLEGIA, ALTERNATING

See also:  Epilepsy; Seizure Disorders

 

International Foundation for Alternating Hemiplegia of Childhood

http://www.ahckids.org

 

 

HEMISPHERECTOMY

See:  Rasmussen Syndrome

 

 

HEMOLYTIC-UREMIC SYNDROME

See:  Kidney Disorders

 

 

HEMOPHILIA

National Hemophilia Foundation

http://www.hemophilia.org

 

World Federation of Hemophilia

http://www.wfh.org

 

 

HEMORRHAGIC TELANGIECTASIA, HEREDITARY (hht)

Hereditary Hemorrhagic Telangiectasia (HHT) Foundation International Inc.

http://www.hht.org

 

 

HEPATOPHOSPHORYLASE DEFICIENCY GLYCOGENOSIS

See:  Glycogen Storage Diseases; Muscular Dystrophy

 

 

HERMANSKY-PUDLAK SYNDROME

See also:  Albinism & Hypopigmentation; Visual Impairments

 

Hermansky-Pudlak Syndrome Network Inc.

http://www.hpsnetwork.org

 

 

HERNIA, DIAPHRAGMATIC

CHERUBS The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support

http://www.cherubs-cdh.org

 

 

HIRSCHSPRUNG DISEASE

See:  Intestinal Pseudo-Obstruction Syndrome

 

 

HISTIOCYTOSIS

See also:  Growth Disorders; liver Disorders; Lung Diseases; Pituitary Tumors

 

Histiocytosis Association of America

http://www.histio.org

 

 

HIV

See:  AIDS

 

 

HODGKIN DISEASE

See: Leukemia

 

 

HOLOPROSENCEPHALY

See also:  Craniofacial disorders

 

The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

http://hpe.standford.edu

 

 

HUNTER SYNDROME

HURLER SYNDROME

HURLER / SCHEIE SYNDROME

See:  Mucopolysaccharidosis: Tay-Sachs Disease

 

 

HUTCHINSON-GILFORD SYNDROME

See:  Progeria

 

 

HUTCHINSON-WEBER-PEUTZ SYNDROME

See:  Colon Cancer, Hereditary; Polyposis

 

 

HYCROCEPHALUS

Hydrocephalus Association

http://www.neurosurgery.mgh.harvard.edu/ha/

 

National Hydrocephalus Foundation

http://www.nhfonline.org

 

 

HYCROCEPHALUS, OBSTRUCTIVE

See:  Dandy-Walker Syndrome

 

 

HYPERCALCEMIA SYNDROME, INFANTILE, IDIOPATHIC

See:  Williams Syndrome

 

 

HYPERCALCEMIA-SUPRAVALVAR AORTIC STENOSIS

See:  Williams Syndrome

 

 

HYPERLEXIA

See:  Autism

 

American Hyperlexia Association

http://www.hyperlexia.org

 

 

HYPERTELORISM / HYPOSPADIUS SYNDROMES

See:  Opitz Syndrome

 

 

HYPERTHYROID MYOPATHY

See:  Muscular Dystrophy; Thyroid Disorder

 

 

HYPOMYELINATION

See:  Myelin Disorders

 

 

HYPOPARATHYROIDISM

See also:  Panathyroid Disorders

 

Hypoparathyroidism Association, Inc.

http://www.hypoparathyroidism.org

 

 

HYPOPLASIA OF THE CORPUS CALLOSUM

See:  Agenesis of the Corpus Callosum

 

 

HYPOPLASTIC ANEMIA

See:  Anemia, Aplastic

 

 

HYPOPLASTIC LEFT HEART SYNDROME

See:  Heart Disorders

 

 

HYPOTHYROID MYOPATHY

See:  Muscular Dystrophy; Thyroid Disorders

 

 

HYPOTONIA, BENIGN CONGENITAL

See:  Spinal Muscular Atrophy

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