HALLERMAN-STREIFF SYNDROME
See: Craniofacial Disorders; Ectodermal
Dysplasias; Short Stature
HALLERVORDEN-SPATZ
SYNDROME
Halervorden-Spatz Syndrome
Association
http://www.hssa.org
HEAD INJURY
See Brain Injury
HEARING IMPAIRMENTS
Alexander Graham Bell
Association for the Deaf and Hard of Hearing
http://www.agbell.org
American Society for Deaf
Children
http://www.deafchildren.org
American Speech, Language,
Hearing Association
http://www.asha.org
Auditory-Verbal International
http://www.auditory-verbal.org
Deafnes Research Foundation
http://www.hearinghealth.org
Gallaudet University
http://www.gallaudet.edu
John Tracy Clinic for
Preschool Deaf Children
http://www.johntracyclinic.org
Lead Line
http://www.hei.org
National Association for the
Deaf
http://nad.com
National Deaf Education
Network and Clearinghouse
http://clerccenter.gallaudet.edu
SEE Center for the
Advancement of Deaf Children
http://www.seecenter.org
SHHH: Self Help for Hard of
Hearing People
http://www.shhh.org
Telecommunications for the
Deaf, Inc.
http://www.tdi-online.org
The Learning to Listen
Foundation
http://www.learningtolisten.org
National Cued Speech Association
(NCSA)
http://www.cuedspeech.org
HEART DISORDERS
American Heart Association
http://www.americanheart.org
CHASER: Congenital Heart AnomaliesSupport, Education,
& Resources, Inc
http://www.csun.edu/~hfmth006/chaser
HEMIHYPERTROPHY
See: Beckwith-Wiedeman Syndrome
HEMIPLEGIA, ALTERNATING
See also: Epilepsy; Seizure Disorders
International Foundation for
Alternating Hemiplegia of Childhood
http://www.ahckids.org
HEMISPHERECTOMY
See: Rasmussen Syndrome
HEMOLYTIC-UREMIC SYNDROME
See: Kidney Disorders
HEMOPHILIA
National Hemophilia
Foundation
http://www.hemophilia.org
World Federation of
Hemophilia
http://www.wfh.org
HEMORRHAGIC
TELANGIECTASIA, HEREDITARY (hht)
Hereditary Hemorrhagic
Telangiectasia (HHT) Foundation International Inc.
http://www.hht.org
HEPATOPHOSPHORYLASE
DEFICIENCY GLYCOGENOSIS
See: Glycogen Storage Diseases; Muscular
Dystrophy
HERMANSKY-PUDLAK SYNDROME
See also: Albinism & Hypopigmentation; Visual
Impairments
Hermansky-Pudlak Syndrome
Network Inc.
http://www.hpsnetwork.org
HERNIA, DIAPHRAGMATIC
CHERUBS The Association of Congenital Diaphragmatic Hernia
Research, Advocacy, and Support
http://www.cherubs-cdh.org
HIRSCHSPRUNG DISEASE
See: Intestinal Pseudo-Obstruction Syndrome
HISTIOCYTOSIS
See also: Growth Disorders; liver Disorders; Lung
Diseases; Pituitary Tumors
Histiocytosis Association of
America
http://www.histio.org
HIV
See: AIDS
HODGKIN DISEASE
See: Leukemia
HOLOPROSENCEPHALY
See also: Craniofacial disorders
The Carter Centers for Brain
Research in Holoprosencephaly and Related Malformations
http://hpe.standford.edu
HUNTER SYNDROME
HURLER SYNDROME
HURLER / SCHEIE SYNDROME
See: Mucopolysaccharidosis: Tay-Sachs Disease
HUTCHINSON-GILFORD
SYNDROME
See: Progeria
HUTCHINSON-WEBER-PEUTZ
SYNDROME
See: Colon Cancer, Hereditary; Polyposis
HYCROCEPHALUS
Hydrocephalus Association
http://www.neurosurgery.mgh.harvard.edu/ha/
National Hydrocephalus
Foundation
http://www.nhfonline.org
HYCROCEPHALUS, OBSTRUCTIVE
See: Dandy-Walker Syndrome
HYPERCALCEMIA SYNDROME,
INFANTILE, IDIOPATHIC
See: Williams Syndrome
HYPERCALCEMIA-SUPRAVALVAR
AORTIC STENOSIS
See: Williams Syndrome
HYPERLEXIA
See: Autism
American Hyperlexia
Association
http://www.hyperlexia.org
HYPERTELORISM /
HYPOSPADIUS SYNDROMES
See: Opitz Syndrome
HYPERTHYROID MYOPATHY
See: Muscular Dystrophy; Thyroid Disorder
HYPOMYELINATION
See: Myelin Disorders
HYPOPARATHYROIDISM
See also: Panathyroid Disorders
Hypoparathyroidism
Association, Inc.
http://www.hypoparathyroidism.org
HYPOPLASIA OF THE CORPUS
CALLOSUM
See: Agenesis of the Corpus Callosum
HYPOPLASTIC ANEMIA
See: Anemia, Aplastic
HYPOPLASTIC LEFT HEART
SYNDROME
See: Heart Disorders
HYPOTHYROID MYOPATHY
See: Muscular Dystrophy; Thyroid Disorders
HYPOTONIA, BENIGN
CONGENITAL
See: Spinal Muscular Atrophy
