CANCER
See also: Bone Marrow Transplant; Brain Tumors; Colon
Cancer, Hereditary; Leukemia; Polyposis
American Cancer Society
http://www.cancer.org
Candlelighters Childhood
Cancer Foundation
http://www.candlelighters.org
CAT’S CRY SYNDROME
See also: Cri Du Chat
Syndrome
CELIAC DISEASE
Celiac Disease Foundation
http://www.celiac.org
American Celiac Society
* amerceliacsoc@netscape.net
American Celiac Society
Dietary Support Coalition
* bentleac@umdnj.edu
CEREBRAL PALSY
United Cerebral Palsy
Associations
http://www.ucp.org
United Cerebral Palsy of NYC
http://www.ucpnyc.org
CHARCOT-MARIE-TOOTH DISEASE
See also: Ataxia; Muscular Dystrophy; Myelin Disorders
Charcot-Marie-Tooth
Association
http://www.charcot-marie-tooth.org
Charcot-Marie-Tooth
International
http://www.cmtint.org
CHARGE ASSOCIATION
See also: Heart
Disorders; Hearing Impairments; Velo-Cardio-Facial Syndrome; Visual Impairments
CHARGE Syndrome Foundation
http://www.chargesyndrome.org
CHRIST-SIEMENS-TOURAINE SYNDROME
See: Craniofacial Disorders; Ectodermal Dysplasias
CHROMOSOME 13 & 18 DISORDERS
See: Chromosome 18 Disorders
CHROMOSOME 4P-
See also: Wolf-Hirschorn Syndrome
Chromosome 4P- Support Group
* syork@scattercreek.com
Priority 4 Families Support
Group (WHS & 4p-)
http://priority4families.tripod.com
CHROMOSOME 5P-
See: Cri Du Chat Syndrome
CHROMOSOME 8P DISORDERS
8p Duplication Support Group
* genemail@aol.com
CHROMOSOME 9 DISORDERS
Chromosome 9p-Network
http://www.9pminus.org
CHROMOSOME 17P-
See: Smith-Magenis Syndrome
CHROMOSOME 11Q-
Chromosome 11Q- Research and Resource Group
http://ucsu.colorado.edu/~bia
CHROMOSOME 18 DISORDERS
Chromosome 18 Registry & Research Society
http://chromosome18.org
CHROMOSOME 21 RING
See: Chromosome Deletions
CHROMOSOME 22 RING
See also: Chromosome Deletions
Chromosome 22 Central
http://www.c22c.org
CHROMOSOME 3, MONOSOMY 3P2
See: Chromosome Deletions
CHROMOSOME 4 RING
See: Chromosome Deletions; Wolf-Hirschhorn
Syndrome
CHROMOSOME 45,X
CHROMOSOME 45,X / 46,XX
See: Turner Syndrome
CHROMOSOME 46XY / 47,XXY
CHROMOSOME 47,XYY
CHROMOSOME 48,XXXY
CHROMOSOME 48,XXYY
CHROMOSOME 49,XXXXY
See: Klinefelter Syndrome
CHROMOSOME 9 RING
See: Chromosome Deletions; Craniofacial Disorders
CHROMOSOME DELETIONS
Chromosome Deletion Outreach, Inc.
http://www.chromodisorder.org
CHROMOSOME DISORDERS
See also: Chromosome 13& 18 Disorders
Chromosome 22 Central
http://www.c22c.org
CHROMOSOME INVERSIONS
National Center on Chromosome
Inversions
http://www.Barkersnet.com/NCFCI
CHRONIC FATIGUE SYNDROME
CFIDS Association of America
Youth Alliance
http://www.cfids.org
CLEFT PALATE
See also: Craniofacial Disorders
Cleft Palate Foundation
http://www.cleftline.org
COFFIN-LOWRY SYNDROME
Coffin-Lowry Syndrome
Foundation
http://clsfoundation.tripod.com
COLITIS
See: Crohn Disease & Colitis
COLON CANCER, HEREDITARY
Hereditary Colon Cancer
Registry
http://www.hopkins-coloncancer.org
Hereditary Colon Cancer
Association
http://www.hereditarycc.org
CONNECTIVE TISSUE DISORDERS
Coalition for Heritable
Disorders of Connective Tissue
http://www.marfan.org
COOLEY ANEMIA / THALASSEMIA MAJOR
See also: Autoimmune
Disorders
Cooley’s Anemia Foundation
http://www.cooleysanemia.org
Thalassemia Action Group
* ncaf@aol.com
CORNELIA DE LANGE SYNDROME
Cornelia de Lange Syndrome
Foundation
http://cdlsoutreach.org
CRANIOFACIAL DISORDERS
AboutFace International
http://www.interlog.com/abtface
AboutFace USA
http://www.aboutface2000.org
Tennessee Craniofacial Center
http://www.erlanger.org/cranio
FACES—The National
Craniofacial Association
http://www.faces-cranio.org
Let’s Face It
http://www.faceit.org
National Foundation for
Facial Reconstruction
http://www.nffr.org
Children’s Craniofacial
Association
http://www.ccakids.com
CRI DU CHAT SYNDROME
5p- Society
http://www.fivepminus.org
CROHN DISEASE & COLITIS
CCFA: Crohn’s & Colitis
Foundation of America
http://www.ccfa.org
CROUZON DISEASE
See: Craniofacial Disorders
CUSHING SYNDROME
See: Adrenal Disorders
CYCLIC VOMITING SYNDROME
Cyclic Vomiting Syndrome
Association
http://www.cvsaonline.org
CYSTIC FIBROSIS
Cystic Fibrosis Foundation
http://www.ccf.org
CYSTINOSIS
See also: Kidney Disorders
Cystinosis Foundation
http://www.cystinosis.com
CYSTINURIA
See also: Kidney Disorders
Cystinuria Support Network
http://www.cystinuria.com
CYTOMEGALOVIRUS (CMV), CONGENITAL
Clinical Care Center
http://www.bcm.tmc.edu/pedi/infact/cmv