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Nat'l Resources - "D" & "E"
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DANDY-WALKER SYNDROME

DANDY-WALKER SYNDROME

See also:  Hydrocephalus

 

Dandy Walker Home Page

http://www.geocities.com/Heartland/Hills/3919/dws.html

 

NINDS Dandy Walker Syndrome Information Page

http://www.ninds.nih.gov/health_and_medical/disorders/dandywalker.htm

 

 

DARIER DISEASE

See:  Ichthyosis

 

 

DE BARSEY SYNDROME

DE BARSEY-MOENS-DIERCKS SYNDROME

See:  Connective Tissue Disorders

 

 

DEAF-BLIND

See also:  Hearing Impairments; Visual Impairments

 

Deaf Blind Resources

http://dww.deafworldweb.org/int/us/deafblind.html

 

National Family Association for Deaf-Blind

http://www.NFAD.org

 

 

DEAFNESS

See: Hearing Impairments

 

 

DIABETES INSIPIDUS

See also: Autoimmune Disorders

 

The Diabetes Insipidus Foundation, Inc.

http://diabetesinsipidus.maxinter.net

 

 

DIABETES MELLITUS

See also:  Autoimmune Disorders; Kidney Disorders

 

American Diabetes Association

http://www.diabetes.org

 

 

DYSTONIA

Dystonia Medical Research Foundation

http://www.dystonia-foundation.org

 

 

DOWN SYNDROME

Association for Children with Down Syndrome

http://www.acds.org

 

Foundation for Children with Down Syndrome

http://www.ffcwds.org

 

National Down Syndrome Congress

http://www.ndsccenter.org

 

National Down Syndrome Society

http://www.ndss.org

 

Trisomy 21 Research Foundation

http://www.tri21.org

 

 

DUBOWITZ SYNDROME

See also: Craniofacial Disorders; Growth Disorders

 

Dubowitz Syndrome Parent Support Network

http://dubowitz.org

 

 

DUCHENNE MUSCULAR DYSTROPHY

See:  Muscular Dystrophy

 

 

DWARFISM

See also:  Growth Disorders; Short Stature

 

Billy Barty Foundation

http://www.rth.org/bbf/

 

Metatropic Dwarf Registry

http://u2.netgate.net/~cfigone/mdr/Index.htm

 

 

DYSAUTONOMIA

National Dysautonomia Research Foundation, (NDRF)

http://www.ndrf.org

 

 

DYSLEXIA

See also:  attention Deficit Disorder; Learning disabilities

 

Dyslexia Research Institute

http://www.dyslexia-add.org

 

The International Dyslexia Association

http://www.interdys.org

 

 

ECTODERMAL DYSPLASIAS

ELLIS-VAN CREVELD SYNDROME

National Foundation for Ectodermal Dysplasia

http://www.nfed.org

 

 

EHLERS-DANLOS SYNDROME

See also:  Connective Tissue Disorders; Glaucoma; Visual Impairments

 

Ehlers-Danlos National Foundation

http://www.ednf.org

 

 

EMG SYNDROME

See:  Beckwith-Wiedemann Syndrome

 

 

ENCEPHALITIS, CHRONIC LOCALIZED

ENCEPHALITIS & EPILEPSY, CHRONIC

ENCEPHALITIS, RESMUSSEN

See:  Rasmussen Syndrome

 

 

ENCEPHALOFACIAL ANGIOMATOSIS

ENCEPHALOTRIGEMINAL ANGIOMATOSIS

See:  Sturge-Weber Syndrome

 

 

ENCEPHALOMYELOPATHY

See:  Lactic Acidosis; Mitochondrial Disorders

 

 

ENCEPHALOMYLORADICULOPATHY, ACUTE ISSEMINATED

See:  Guillain-Barre’ Syndrome

 

 

EPIDERMOLYSIS BULLOSA, DYSTROPHIC           

See also: Connective Tissue Disorders

 

DEBRA: Dystrophic Epidermolysis Bullosa Research Association

http://www.debra.org

 

 

EPILEPSY

See also:  Seizure Disorders

 

American Epilepsy Society

http://www.aesnet.org

 

Epilepsy Foundation of America

http://www.efa.org

 

 

EPILOIA

See:  Tuberous Sclerosis

 

 

ERB PALSY

ERB / DUCHENNE PALSY

Brachial Plexus / Erb’s Palsy Support and Informational Network, Inc.

http://www.customforum.com/nationalbpi

 

 

EXOSTOSES, MULTIPLE HEREDITARY

The MHE Coalition / MHE Family Support Group

http://www.radix.net/~hogue/mhe.htm

 

MHE and Me—A Support Group for Kids with Multiple Hereditary Exostoses and Their Families

http://www.geocities.com/mheandme

 

 

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